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Peggy O'Mara

A Quiet Place

US Gets Crash Course on Normal Breastfeeding

May 17th, 2012

It’s all about breastfeeding right now.

If you signed Public Citizen’s petition to stop distribution of formula samples to new moms in hospitals, you’ll want to know that PC is kicking it up a notch and moving to direct action. Be part of their Rapid Response Team to write letters, send emails, contact hospitals, challenge formula companies and generally raise awareness.

This Saturday, May 19th, there will be a virtual and real-time demonstration against Nestle’s aggressive marketing of infant formula. The real-time demonstration is at Nestle’ headquarters in Croydon, UK from 11:00 to 12:00 AM.

Monday, May 21st, Jay Gordon, MD, will be on CNN’s Anderson Cooper (the daytime show) to defend Attachment Parenting in general and his friends, Mayim Bialek and Jamie Lynne Grumet, in particular. Actress and neuroscientist, Mayim Bialik, is an avid attachment parent and the author of Beyond the Sling. Here’s her response on CNN to the Time cover.

On next Tuesday May 22nd there will be a Nurse-In in New York City at ABC’s The View and a virtual show of support for breastfeeding.

In case you haven’t seen:

Attachment Parenting International’s response to the Time article.

Dr. Bill Sears response to the Time article.

Fascinating Scientific American article on the average age of weaning worldwide (between 2.8 and 3.7 years old) and how “Western nations appear to be an outlier to what is otherwise a natural behavior for our species.”

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TIME IS ON OUR SIDE

May 14th, 2012

 

I hate the Time magazine cover. I love the Time magazine cover.

I hate the cover because it is sensational and exploitive. The stylized photo of a defiant looking mom nursing a 4-year-old boy dressed in camouflage and standing on a chair portrays attachment parenting as extreme and even militant. The cover is sensational because it depicts something highly unusual: nursing while a child is standing on a chair.

RARE TO NURSE A TODDLER

Nursing for longer than four years is extremely rare in the US. When we surveyed the Mothering readership in 2006, we found that 10% breastfed until a year; 41% breastfed for one to two years; 32% for two to three years; and 6% for more than four years. This is among a population in which 96% breastfeed..

In US society at large 22.4% are still nursing at a year. The CDC does not keep statistics on breastfeeding beyond one year, but it’s safe to assume that breastfeeding for more than four years occurs less than 1% of the time in the US at large.  It’s uncommon, even among attachment parents.

Time’s cover is exploitive of the child photographed. The image is far from tender and has an erotic edge to it. Nursing is not something that a child would customarily pose for or do at the mother’s request; the image belies the fact that older children nurse infrequently and are generally not exhibitionists.

WATERSHED FOR BREASTFEEDING

I love the Time cover because it is a landmark moment for breastfeeding. Attachment parenting has gone mainstream. Everyone has heard of it now. The cover was featured in two of this week’s Saturday Night LIve skits, but it wasn’t attachment parenting that was lampooned: it was the cover image. The cover has had a unifying effect because it has been so universally ridiculed as overreaching.

It’s no coincidence that this cover comes on the heels of a month of intense and effective breastfeeding advocacy. In early April, Public Citizen started a petition to outlaw the distribution of formula samples in hospitals in support of the WHO Code of the Marketing of Breastmilk Substitutes. This is the first time that a group outside of the breastfeeeding community has initiated such an effort.

On April 19th, Mayor Bloomberg and the New York City Health Department announced that they are putting their support behind the Baby Friendly Hospital Initiative for 24 NYC hospitals. Formula samples cannot be given away in baby-friendly hospitals. This is the first time a US mayor made a commitment of this nature to breastfeeding.

INTENTIONALLY UNDERMINING BREASTFEEDING

Not coincidentally, The Conflict: How Modern Motherhood Undermines the Status of Women by Elisabeth Badinter, was released on April 24th. Badinter is an old-school feminist who believes that breastfeeding is inherently oppressive despite it being the feminist issue of our time. She is also owner of Publicis, public relations company for Nestle’, the world’s largest formula manufacturer. According to Katy Allison Granju, Badinter’s company also represents the manufacturers of Enfamil and Similac. Her job is to increase formula sales!

In the context of one of the biggest months ever for breastfeeding advocacy, we have the Time cover, which clearly deprecates breastfeeding mothers. Time is looking for newsstand sales. And, they are beholden to their advertisers, especially during these times of severely declining print ad revenue. Formula manufacturer, Pfizer, for example, is the third top advertiser in the US and spent $90.6 million in advertising in the first quarter of 2011 alone. On April 27th, Pfizer announced that it is selling its nutritional business to Nestle’; the baby formula division is expected to generate $2.4 billion in sales in 2012.

BREASTFEEDING MAKING IT

In some ways it is a tribute to our efforts that breastfeeding has become the bell weather for attachment parenting. And, it’s a tribute to us as women that we less easily take the media bait to attack other mothers. This time, we are all united in our shock over the Time cover. They say that a new idea is first ignored, then ridiculed and finally attacked before it is assimilated. We must be winning because breastfeeding is definitely being attacked.

I hope that we can resist the temptation to go unnecessarily down bunny holes defending ourselves when we could instead unite to help pass essential breastfeeding and family leave legislation. That’s what we really need to do.

Let’s bring it home, sisters. “The heart is a muscle the size of your fist. Keep on loving. Keep on fighting.”

(Thanks to Jennifer Tite for the use of her photo.)

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Sign the Public Citizen Petition

April 9th, 2012

Formula was directly advertised to consumers for the first time in 1989. Prior to that, formula was marketed only to health care professionals who, in turn, prescribed it to their patients. Prescription drug use has increased 71% since drugs were first advertised to consumers, and likewise, formula feeding increases when formula is marketed directly to new moms.

Most new moms want to breastfeed; 75% give it a try. While the American Academy of Pediatrics recommends that all US babies be exclusively breastfed for six months, only 13.3% are. One of the obstacles to continued breastfeeding for many moms is the relentless marketing of formula; nearly two-thirds of new mothers receive free formula samples. 

Most of the 3300 US maternity hospitals distribute industry sponsored sample packs of formula to new mothers, regardless of whether or not they are breastfeeding. A study in Pediatrics showed that only 28% of these hospitals were sample free in 2010, up from 14% in 2007.

Research shows that formula marketing undermines breastfeeding. Both the American Academy of Pediatrics (AAP) and the Centers for Disease Control and Prevention (CDC) have called for an end to formula samples in hospitals. The WHO International Code of Marketing of Breast-milk Substitutes monitors formula advertising internationally because 5000 babies a day die from lack of breastfeeding.

In 2005, Massachusetts became the first state to ban the distribution of formula samples to new mothers in health care facilities. The Massachusetts Breastfeeding Coalition, co-founded by Marsha Walker, worked for eight years to get this legislation passed and also launched a national campaign, Ban the Bags, to eliminate the distribution of formula discharge samples.

The Massachusetts governor at the time was Mitt Romney, who pressured the Public Health Council to rescind the ban. The council successfully resisted his pressure until he fired and replaced three members just prior to a vote on the ban; it was rescinded in May 2006. Less than two weeks later, Romney announced a deal with Bristol-Myers Squibb, the world’s largest formula maker, to build a $66 million pharmaceutical plant in Devens, Massachusetts. Nonetheless, many Massachusett hospitals upheld the ban voluntarily.

In 2007, Portland, Oregon became the first city in the US to become “bag-free” and in November 2011, Rhode Island banned formula sample giveaways in healthcare facilities.

Public Citizen, the premier consumer advocacy group founded in 1971, has taken up the cause of banning formula sample bags. In March, the organization wrote to 2600 US hospitals urging them to discontinue the distribution of commercial infant formula discharge bags.

On April 9th, Public Citizen launched a petition demanding that Abbott, Mead Johnson and Nestle stop distributing samples of infant formula in health care facilities; over 12,000 have signed it so far. According to the petition, “the immediate end of this practice would be a crucial initial step to become fully compliant with the WHO International Code of Marketing of Breast-milk Substitutes.”

Does the hospital in your town distribute free formula samples to new moms? Here’s a list of bag free hospitals and here are the hospitals that received Public Citizen‘s letter. In her Ban the Bags article for Mothering, Marsha Walker suggests a letter of complaint to the CEO and other officials of the hospital as a first step. Here’s a sample letter from Ban the Bags.

Check out the Ban the Bags Tool Kit.and other Action Ideas. If Public Citizen doesn’t get any response from the hospital in your area, consider social action. Start a thread in Lactivism or Finding Your Tribe to encourage others to join you.

Sign the petition today.

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The Autism Epidemic

April 2nd, 2012

Photo of Timmy and Emmy Conroy of Boulder, Colorado by Julia Vandenoever

Just last week, the CDC announced a new estimate of the number of children identified with Autism Spectrum Disorder (ASD): 1 in 88. This is up from the CDC’s 2007 estimate of 1 in 150. According to the CDC, the estimated prevalence of ASDs increased 78% from 2002 to 2008.

Five times as many boys as girls are diagnosed with ASD: 1 in 54 for boys; 1 in 252 for girls. According to Mark Blaxill of Safe Minds, the rate of ASD in some states is 1 in 50. Utah, for example has a rate of 1 in 47; New Jersey’s rate is 1 in 49. Autism affects over 100,000 families.

At a press conference on World Autism Awareness Day, Blaxill called for: real community participation; an investigation by the Government Accounting Office (GAO); Congressional hearings; and telling the truth about vaccines and autism.

Vaccines and Autism. While the possible association between childhood vaccines and autism has been categorically denied by many, a 2011 study in the Pace Environmental Law Review identified 83 cases of autism associated with childhood vaccine injury that have been compensated for through the National Vaccine Injury Compensation Program (NVICP). 

Safe Minds,  the non-profit organization founded by parents of autistic children, hopes “to restore health and protect future generations by eradicating the devastation of autism and associated health disorders induced by mercury and other man made toxicants, and to eliminate exposure to mercury in medical products, vaccines, and in the environment.” Their outstanding “white paper,” The Autism Crisis — April 2012 is full of information that they encourage be shared with others:

Call it an Epidemic. The prevalence of autism is rising at about 12% a year. If we don’t find a cause in the next five years, 80,000 children a year will be diagnosed with autism. Safe Minds asks, “Can anyone with a conscience claim this isn’t an epidemic?”

Allocate more money for Autism research and services. Only $230 million is allocated per year for  the 730,000 people with autism in the US. The National Institutes of Health (NIH), for example, allocates $169 million a year for autism (45,454 babies a year); $170 million for pediatric cancer (800 US babies a year); $228 million for pediatric AIDS (13,333 babies a year).

Fund Environmental Research. The largest twin study to date found that autism risk is 55 to 58% environmental and only 37 to 38% genetic. Despite this finding, funding for genetic causation research outweighed funding for environmental causation research approximately six to one in 2009. Safe Minds calls for research into populations that may be more susceptible to vaccine injury.

Compare Vaccinated and Unvaccinated Children. The August 2011 Institute of Medicine report on Vaccine Adverse Effects investigated 158 potential adverse outcomes from vaccines. Of these, 135, or 85%, were found to have inadequate research to accept or reject a causal association. Of the 23 outcomes where the research was deemed adequate, 18, or 78%, were found supportive of harm. Research was only adequate to clear five of the 158 outcomes from vaccine safety concerns.

It is time for a large trial of vaccinated and unvaccinated children to see if there are higher autism rates among vaccinated children than among those who have never been vaccinated.

 

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The Great Cloth Diaper Change

March 26th, 2012

Want to help set a world record? Join the Great Cloth Diaper Change. In 2011, Judy Aagard, co-owner of Tiny Tots Diaper Service in Campbell, California, organized the first Great Cloth Diaper Change (GCDC). She wanted to celebrate Earth day with a family event.

Last year, the GCDC set the world record for the most cloth diapers changed simultaneously: 5026. Five countries were involved at 127 locations. To qualify for the cloth diaper record, the Guinness Book of World Records rules stipulate that the baby must be shorter than 39 inches and be accompanied by only one adult for the diaper change.

This year’s Great Cloth Diaper Change will be held April 21st. So far this year, 232 hosts have completed their official registrations for events in 13 countries including: Australia, Belgium, Brazil, Canada, Chile, Estonia, Germany, Ireland, Malaysia, Spain, Switzerland, and USA. How can you get involved?

Find an existing location.

Apply to be a host. The Great Cloth Diaper Change can be a community event where other family activities such as baby yoga, a photo session, family music, diaper donations and/or information tables are available.  Just make sure and choose a space large enough for lots of simultaneous diaper changing!

The Week of April 16 through April 21 will be Real Diaper Week. Look for coverage here on mothering.com. We’d love to publish stories of GCDC events among the Mothering community.

Enter our Cloth Diaper Photo Contest.

Here are some threads in Finding Your Tribe and Diapering that might help to find others interested in co-hosting a GCDC group with you or attending yours.

 

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Take Off Your Shoes

March 16th, 2012

 

Simply taking off your shoes before coming inside can reduce indoor pollutants by 85%, according to Rachel Lincoln Sarnoff, executive director and CEO of the non-profit, Healthy Child Healthy World (HCHW). I heard Sarnoff speak at a breakfast last week hosted by Nordic Naturals at the Natural Products Expo. HCHW is currently working with Campbells to phase out BPA in their cans and with the FDA to encourage regulation of GMO food.

Sarnoff pointed to the fact that the IQs of children have increased as lead has decreased in the environment. And, while environmental insults can seem overwhelming, HCHP’s message is simple: “Noone can do everything, but everyone can do something.” Taking your shoes off is one of five steps she suggests for getting more healthy:

1. Avoid Pesticides.

2. Use non-toxic products.

3. Clean up indoor air.

4. Eat healthy food.

5. Be wise with plastics.

Here are some resources for taking these steps:

1. Avoiding Pesticides means limiting your exposure to pesticides in several environments. Eating organic food helps eliminate your intake of pesticides in food. Look for alternatives to toxic products used on lawns, to kill bugs and pests, and use fish emulsion instead of chemicals to feed indoor and outdoor plants. Healthy Child Healthy World has some great tips on avoiding pesticides and suggestions for alternatives.

2. Use non-toxic products. A recent study tested over 200 consumer products for endocrine disruptors and asthma-associated chemicals. Many so-called natural products tested high in these chemicals. Here are the 11 products tested that had no detectable target chemicals and some Tips for Greening your Cleaning and Personal Care Products. 

There are simple, effective, and inexpensive cleaners that can be used at home. I use white vinegar for most things. Mixed with water, it’s great to clean windows. I also use it to clean toilets and surface tops. I use Bon Ami cleanser for sinks, Lemon Oil with Bees Wax for oiling furniture and wood surfaces and Dr. Bronner’s Sal Suds for dishes and washing the floor. A few drops of Oil of Oregano and/or Tea Tree Oil can be used as antibacterials if needed.

For personal care products, one really has to read the labels. You can put your products into the rating system of EWG’s Skin Deep Cosmetics Database to check their level of toxicity.

3. Clean-up Indoor Air is where taking your shoes comes in. The Environmental Protection Agency (EPA) has a very detailed Guide to Indoor Air Quality.

4. Eat Healthy Food means eating more organic food. Start some sprouts in a jar in your kitchen. Plant tomatoes in a container outside. Grow a garden. Plant a fruit tree. Shop at the Farmer’s Market. Shop at your local co-op. These are the fruits and vegetables that the Environmental Working Group (EWG) suggests we buy organic as they are the most commonly contaminated: apples, celery, strawberries, peaches, spinach, nectarines, grapes, sweet bell peppers, potatoes, blueberries, lettuce, kale, collard greens. Refer to the EWG’s Shopper’s Guide to Pesticides in Produce.

5. Be Wise with Plastics has to do with becoming aware of our reliance on plastic. I use glass containers with glass lids to store my food in the refigerator. I buy organic milk that comes in glass bottles. I use waxed paper bags instead of plastic to store food, like cheese, in the refrigerator. And, I re-use the plastic bags I get at the grocery story. Stainless steel containers can be a good alternative to plastic, especially for water.

Otherwise, I get confused about plastic. I know, of course, that I want to avoid BPA and phthlates in plastic, but I just try to avoid plastic as much as possible. Here is a Smart Plastics Guide from WHO and the EPA, and a Guide to Safer Children’s Products from the Oregon Environmental Council.

What’s one step you are taking with your family to move in a more natural direction?

 

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Natural Products Expo Update

March 14th, 2012

 

When I first attended Natural Products Expo West 14 years ago, I was moved by the realization that such a huge industry had been germinated by my generation as we figured out how to lead a natural life in the sixties and seventies. That industry is even bigger now. In fact, The Natural Products Expo West is one of the biggest trade shows in the world; 50,000 people attended the first day.

One exciting trend I saw at the Expo was the move toward labeling of Genetically Modified Organisms (GMO) food. Ronnie Cummins and the Organic Consumers Association has been working on this issue for years and it’s finally getting some momentum. People at the show were gathering plenty of signatures from California voters to put a GMO labeling bill on the California ballot in November. Just this week, 55 members of Congress asked the FDA to label GMO foods. Here’s an Infographic from Just Label it that gives background on GMO Foods. If you want to find out more about the California Ballot Initiative, see California Right to Know.

As the natural products industry grows, I wonder how one can tell what are the best quality products. How can you differentiate between a good product and simply a well marketed one?

A banner at the B Corporation booth addressed my question. (see at right) 500 Certified B Corporations have voluntarily met high standards of transparency, accountability, and performance. They hope to redefine  business success to include not only high growth, but also high impact.

I tend to trust a company with a long history and a commitment to an educational mission and/or a social cause. Melinda Olson of Earth Mama Angel Baby has long been committed to truth in labeling and to purity of ingredients. Her products are literally good enough to eat. Suzanne Siemens and Madeleine Shaw of Lunapads help to support Pads4Girls, an African charity that provides cloth pads for African girls.

Lightlife is partnering with the non-profit, Urban Farming, to help end hunger. Gaia Herbs, grower and manufacturer of organic herbs, just introduced an industry-first program called Meet Your Herbs. Each product has an ID number by which you can track the story of your herbs from “seed to shelf.”

Nordic Natural (NN) continues to be the leader in the industry with their superior standards of safety, purity and sustainability. NN has research supporting their claims on their website; they host a separate website entirely for research, omega-research.com, and research on third party sites supports their claims. This type of redundancy is something to look for in a top company.

Blueberries and hemp were big at the Expo. Elderberry looks to be the next big immune booster. Coconut was everywhere and especially great mixed with peanut butter, which is expected to be at a premium this year. Here are a few products that stood out to me.

Artisana has a raw, superfood called Berry AntiOxidant Nut Butter made from raw organic cashew butter, raw organic almond oil, raw organic goji berry powder, raw organic blueberry powder, raw organic agave, and raw organic stevia. It comes in packets that can be mixed together before spreading and would be perfect for lunch boxes.

ChildLife has a new product called Toothpaste Tablets for children. Instead of a tube of toothpaste, one chews a tablet, brushes one’s teeth and rinses. I think children would like this product and it was named the Most Innovative Dental Product in 2011. ChildLife products are developed by Dr. Murray Clarke,ND, D.Hom, LAc, the author of Natural Baby–Healthy Child: Alternative Health Care Solutions from Pre-conception Through Childhood.

Maggie’s Naturals are natural food colorings that come in Pink, Green, Blue, Orange, Brown and Yellow. The colors look bright and rich and the ingredients are vegetables, seeds, extracts, glycerin, and citric acid. Green, for example, is made from gardenia extract, spinach, parsley, organic vegetable glycerin, citric acid. The food colorings are organic and gluten free. I would have loved these for holidays when my children were small.

Even though I’m scent sensitive, I can’t stop smelling the samples of Zum Bar goat’s milk soap. The colors and scents are extraordinary. They use goat’s milk, 100% pure essential oils, veggie oils, herbs, natural glycerin, and natural mineral pigments.

I hope to write a series of blogs on how to read a label and what qualities to look for in a top natural products company. Labels can contain the word “organics” and not be organic at all, for example. New labels come into the marketplace every year. This year Gluten Free was popular, sometimes with companies that were never full of gluten in the first place. It makes sense for us to reduce, reuse, recycle and when we buy new to buy the best products from the best companies. I hope I can help us figure this out.

 

 

 

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Facebook Censors Nude Breastfeeding Photos

February 17th, 2012

 

 

Documents recently leaked to Gawker confirm what the breastfeeding community has always suspected. In the leaked “Abuse Standards Violation” document, Facebook employees are specifically directed to delete images of “Mothers breastfeeding without clothes,” and “Naked children…”

Facebook has been widely criticized for its content moderation standards and those who complain are often referred to the vague Statement of Rights and Responsibilities.  According to Gawker, “If users knew exactly what criteria was being used to judge their content, they could hold Facebook to them. It would be clear what Facebook was choosing to censor according to its policies, and what amounts to arbitrary censorship.”

In addition, according to the whistle blower, content management services are outsourced to countries like Turkey, the Philippines, Mexico and India where workers are paid from $1 to $4 an hour. Aside from the ethical questions raised by this arrangement, how could workers from different countries interpret the FB standards consistently?

Internet censorship is a hot topic right now because of the recent controversy over SOPA and PIPA, and as Facebook prepares to go public, the company is being closely scrutinized. “I don’t know whether dictatorship is the right word, but it more or less defies every vestige of shareholder democracy known to man…I don’t think it’s how business should be run.” said Larry Haverty of Gamco Investors Inc. in the San Francisco Chronicle last week.

With these kinds of standards and governance in place, how can the breastfeeding community continue to impact Facebook? Last week thousands of breastfeeding mothers demonstrated in front of Facebook headquarters around the world. Historically, these types of nurse-ins have been effective in bringing an issue to public awareness but they have not been successful in changing the censorship policy of Facebook.

What I wonder about in regards to the FB censorship is how breastfeeding photos are being reported. Though Facebook is a public forum, images are semi-private. You have to be friends with someone to see their photos. Nude breastfeeding photos don’t often appear as someone’s main photo. This means that someone who reports a photo may be befriending and then stalking someone they don’t know. Are voyeurs reporting these photos? Maybe they are the ones who should be reported.

I’m not sure where we go from here, but I know that the breastfeeding community is among many voices challenging Facebook at this time. What do you think?

Are all breastfeeding photos appropriate for Facebook or are some private?

Is there a different standard for an image in a general forum, like Facebook, than for an image in a breastfeeding-friendly forum like Mothering, for example?

What do you think would be the ideal breastfeeding image standard for Facebook?

 

 

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What is Love?

February 13th, 2012

 

Like most of us, I have long pondered the meaning of love. As a young woman, I equated love with sad poems and tragic romantic scenarios. Now I see love as an action rather than a feeling. In The Road Less Traveled, M. Scott Peck defines love this way:

“GENUINE LOVE IMPLIES COMMITMENT AND EXERCISE OF WISDOM…THE WILL TO EXTEND ONESELF FOR THE PURPOSE OF NURTURING ONE’S OWN OR ANOTHER’S SPIRITUAL GROWTH.”

In order to explore the more mature love that Peck describes, one must be able to delay gratification, accept responsibilities for one’s actions, speak and act honestly, and keep things in balance. These are all things that we are challenged to learn to do during the early months of parenting and that then inform our couple relationship.

Our couple relationship is fragile during the early years of parenting because we have so little time for ourselves, much less for one another. We are also both changing so much and learning so much as new parents that we have to redefine, just like everything else, our couple relationship.

“WHERE LOVE IS, NO ROOM IS TOO SMALL.” Talmud

How can we make room for our love once baby has come? Without putting too much pressure on yourselves, be ready to respond to a time when the baby first goes down for sleep at night, for example, as a time to check in with one another. Eventually find two hours a week to be together to talk. You don’t have to go out; make a special candlelit dinner at home. Have a picnic on the living room floor. As the baby can tolerate it, go out for two hours together one time a week. This is a period during which the ability to delay gratification will come in handy.

‘LOVE CONSISTS IN THIS, THAT TWO SOLITUDES PROTECT AND TOUCH AND GREET EACH OTHER.” Rainer Maria Rilke

Do nice things for one another. Leave a loving note. Write something on the bathroom mirror. Offer to help out with an inconvenient task. Notice something that needs to be done before someone mentions it. Lean on one another. Pick up the slack for each other. Let yourself be helped.  Here’s where accepting responsibilities for one’s actions will go a long way.

I HAVE FOUND THE PARADOX, THAT IF YOU LOVE UNTIL IT HURTS, THERE CAN BE NO MORE HURT, ONLY LOVE. Mother Teresa.

We suffer for love. Real love is not always convenient and we can’t control it. The early months of parenting are a time that we just have to suffer through and we must not criticize ourselves if we break down at times and feel that we’ve reached our limit. This is simply evidence that we have the courage to suffer for love. Here’s where speaking and acting honestly will help ameliorate the suffering.

YOUR TAKS IS NOT TO SEEK FOR LOVE, BUT MERELY TO SEEK AND FIND ALL THE BARRIERS WITHIN YOURSELF THAT HAVE BUILT AGAINST IT.” Rumi

Through suffering the early months and years of parenting, we learn to take ourselves seriously. We see that our children are mirrors of ourselves and learn from our example. If we want to love them, and hope to guide them, then we have to change ourselves first. We always have to change ourselves first. And, at the same time, we have to refrain from taking ourselves too seriously and continue to trust that things are as they should be. A healthy sense of humor can help keep things in balance. Humor is the universal antidote to any and all of our negative emotions.

When I’m feeling sorry for myself and over-dramatic about my own suffering, I like to listen to Monty Python’s, “Four Yorkshiremen.

How do you keep your sense of humor as a parent and a partner?

 

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Are we Abandoning Families with Autism?

January 25th, 2012

On June 19, 2002 I attended the congressional hearing, “The Status of Research into Vaccine Safety and Autism” in Washington DC. This hearing was part of the oversight investigation of the Committee on Government Reform, headed at the time by Congressman Dan Burton (IN-REP).

According to the background material presented to the Committee by Congressman Burton, “When the Committee began its oversight investigation in 1999, autism was thought to affect 1 in 500 children.” In 2002, when the hearing was held, autism was thought to affect 1 in 250 children. CDC data from 2010 indicates that 1 in 110 children have an autism spectrum disorder (ASD).

As I was leaving the hearing, I saw a woman standing outside holding a sign detailing the $30,000 a year it cost to care for her autistic child.  According to a 2007 study by Michael L. Gantz, MS, PhD, “The Lifetime Distribution of the Incremental Societal Costs of Autism,” autism costs our society “upwards of $35 billion in direct (both medical and nonmedical) and indirect costs to care for all individuals diagnosed each year over their lifetimes.”

For families this translates into direct medical costs estimated at $29,000 a year; direct non-medical costs of between $38,000 and $43,000 a year; and indirect costs, such as lost wages for parents, of $39,000 to $130,000 a year. Read one family’s story, “The High Cost of Autism” by Theresa Wrangham.

With these sobering numbers in mind, shock waves are reverberating through the autism community because of recent news of proposed changes in the definition of autism. The American Psychiatric Association is in the process of editing the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM) and their expert panel is currently reassessing the definition of autism. It is expected that the panel will tighten this definition and thus reduce the rate of diagnosis.

Proponents for the change contend that the vagueness of the current DSM definition of autism may have contributed to the increase in the diagnosis of autism. Opponents fear that families will be left out in the cold. Changing the definition of autism could effectively end the autism epidemic, according to Fred. R. Volkmar, PhD, director of the Child Study Center at Yale School of Medicine and author of a new analysis of the negative effects of the proposed changes. Quoted in the New York Times of January 20, 2012, Volkmar said, “We would nip it in the bud–think of it that way.”

Writing in The Health Care Blog, Anne Dachel says, “…these children aren’t going away regardless of what we call them…there will be lots of very angry parents who rightly feel that their children mean nothing to the medical establishment whose only aim is to make them disappear.”

Lisa Sykes, founder of CoMeD and mother of a son with autism says, “Deciding to count only some but not all of the children on the autism spectrum is no different than deciding to count some but not all of the children who get hit by a car.  It doesn’t mean they aren’t injured; it just means that we as a society are turning away from the victims and their very real needs.  This manipulation of the autism rates should unite advocates for children and for the disabled to challenge this change in the DSM-V.”

The New York Metro Chapter of the National Autism Association urges families, caregivers, and professionals affected by autism to contact the American Psychiatric Association and other organizations:

American Psychiatric Association

1000 Wilson Boulevard, Suite 1825

Arlington, Va. 22209-3901

1-888-357-7924

apa@psych.org and dsm5@psych.org

Comment on their Facebook page.

 

 

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    Welcome to A Quiet Place

    Mothering's long-time editor and publisher, Peggy O'Mara, shares observations and insights about overcoming parenting obstacles, appreciating unacknowledged epiphanies, and taking care of yourself. Also, great food ideas and recipes, as well as beautiful home and garden tips.

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