Forgot Password?

Jennifer Margulis

Mothering Outside the Lines

The Right to Refuse

April 29th, 2010

My kids and I like to role play. Sometimes I pretend to be a bad guy and I drive by them in my “car,” slowing down and crying out, “Hey kids! Come with me! My dog had puppies and they’re really cute. I’ll take you to go see them. Get in…”

Etani, who’s six, shouts “NO WAY! GET AWAY FROM ME!” and runs in the other direction.

Saying no is a lot harder for Athena, who’s nine. She stops walking and politely declines, “No thank you, sir. I do not want to see a puppy right now, but thank you anyway for asking…”

We teach our children to follow directions, to “be good,” and to do what grown-ups tell them to. That’s not a bad thing. Unless the grown-up in question does not have our child’s best interests in mind.

We teach ourselves to do the same. Most of us are rule followers. We don’t want to be noticed. We don’t want to make waves. We want people to like us. We want to say yes and do as we are told.

So when an authority figure tells us how to take care of our children, we try to follow their advice. That means when a hospital includes Pamper diapers in their gift bag, that is the brand we will use. And when a dentist gives our child fluoride, we accept it.

As adults, we are expected to follow our doctor’s recommendations without question. Healthcare practitioners are often busy and overworked. Most do not have the time to talk to you and when they do they do not expect to have a discussion: they expect you to listen to them and do as they tell you. Even if we intuit that what the doctor’s suggesting is not in our best interests, usually we say little or nothing. We leave the office and seek a second opinion. Or we follow their directions even though it niggles at us, giving in to their authority over our bodies, our health, and our children.

But what if what the doctor recommends is not in the best interest of our child? Last year Harvard University medical students realized they were being duped by their professors, who belittled them in class when they asked about the side effects of different drugs. When a little digging revealed that many of the Harvard Medical School professors were actually working for major drug manufacturers and had a conflict of interest, the students began protesting. (Read the New York Times article on this subject here.) Gone are the days of the American doctor who makes house calls, has dinner with you, and cares deeply about your health and your child’s health, not only because you are paying him but because he knows your family in a personal way. Though I would like to believe that most doctors care about their patients, I also think our healthcare practitioners are more often swayed by financial and political interests, including a huge amount of pressure from drug companies and their peers.

Which brings us back to vaccines. Some of the vaccines given today should not be on the CDC schedule. You cannot keep loading up children with new vaccines, continue giving them the old (and now obsolete) vaccines, and expect this overload of vaccinations to be safe.

With all due respect to the readers who commented yesterday on this blog, it’s ridiculous to argue that it is unethical to do a scientific study with unvaccinated children as a control group. There is nothing unethical about it. These studies absolutely can be done because the unvaccinated or very selectively vaccinated children are already out there. Dr. Jay Gordon, whose interview was deleted from the PBS Frontline documentary, has noticed after thirty years practicing medicine, that it is these unvaccinated children who are the healthiest and most robust.

We don’t know exactly why or exactly how, and the debate about autism is still very much on the table, but I think it is clear that the current CDC vaccine schedule is making our children sick. If you don’t think so, fine. Keep vaccinating your children the way the government has told you to. Since you believe that the vaccines are safe and effective, you can sleep easily at night knowing that following the CDC will keep your child protected and healthy. (At the same time, I invite you to submit yourself to the same schedule as your infant and start going to the doctor every few months to get loaded up on vaccines. Do it as an experiment and see how it makes you feel in both the short term and the long-term.)

But if you have concerns about the vaccine schedule and you believe in the right to refuse having your child injected with a pharmaceutical product that makes drug companies very wealthy, you are not alone.

Despite the way it was depicted on PBS, this is not a fringe movement of hippie dippie woo woo Ashlanders and flighty celebrities. There’s a groundswell of parents in the United States who want to see the guidelines changed, though most of them prefer to stay safely in the closet (which is where I wish I were when people attack me on the Internet and send me hate mail) and keep their choices private.

One such parent is Louise Kuo Habakus, founder of Life Health Choices, who is organizing the American Rally for Personal Rights.Picture 9

When: May 26, 2010 3:00 p.m. – 5:00 p.m.

Where: Grant Park, downtown Chicago

What: A rally with an impressive line-up of speakers to champion vaccination choice and parental consent

For more information: American Rally for Personal Rights

Louise called me yesterday after watching Frontline. There are satellite rallies being planned in several other cities. If you care about the vaccine debate, consider hosting a party or a rally on May 26 in your town.

“Athena,” I say. “Try again. You can say ‘thank you’ but you need to be more forceful. ‘NO! I will NOT go with you.’”

Grown-ups need to learn this lesson as much as children: we all have the right to refuse.

Tags: , , , , , , , , , , ,

[ 7 comments ]

Of Mainstream Media, Hate Mail, and Vaccines

April 28th, 2010

Hannah called just a few minutes after the PBS Frontline “Vaccine War” ended.

“I can’t get the baby to stop crying,” she said.

“I’ll be right home,” I cried, saying a hasty goodbye to my friends and jumping on my bicycle.

Although I think the producers of “Vaccine War” did their best to present both sides, I was a little disappointed with the show.

Here’s why:

1. Although you would not know it from the episode, I am pro vaccine and my children are selectively vaccinated. I think vaccines may be responsible for saving hundreds of thousands of lives. But I’m against the current CDC recommendations and I have deep reservations about what the government is currently recommending for children. They are mandating too many vaccines against too many illnesses. I think they are wrong, for example, to give the Hepatitis B vaccine to newborns whose mothers do not have Hepatitis B.

If you do a risk analysis and you see that many of the vaccine-preventable diseases have been eradicated in America, it makes little to no sense to vaccinate against diseases that no longer exist in America because of the theoretical danger of these diseases being imported from other countries. Yes, Paul Offit is right that polio and diphtheria were once serious illnesses in this country. But now they are so rare that the risk of contracting them may be less than the risk of doing damage to your child’s body and immune system by getting the vaccines.

2. The PBS documentary concentrated on the question of vaccines and autism instead of presenting all the other reasons why some parents choose to selectively vaccinate. Whether vaccines somehow cause autism is only one reason to be wary of vaccines. There are so many more. Although downplayed in the documentary, we know that vaccines can cause serious side effects in some children. But there’s a bigger question about vaccines and the immune system: vaccines may have long-term negative consequences on a person’s immune system. An article in Pediatrics, for example, showed that people who contract measles are less likely to get allergies. What if one of the reasons that auto-immune disorders are on the rise is because we have co-evolved to get certain illnesses and without wild exposure our bodies turn against themselves? I raised this question during the hours of interviews but I guess it was too complicated for a mainstream audience? In general, I feel like the documentary dumbed down the debate.

3. PBS did not include any footage of interviews with any mainstream doctors who are against the current CDC vaccination guidelines, despite the fact that there are hundreds of mainstream medical professionals in practice in America today who disagree with the nation’s vaccination schedule. I’ve interviewed both doctors and nurses who do not vaccinate their children according to CDC guidelines and who disagree with how vaccines are being used today. For more on this, read How to Raise a Healthy Child … In Spite of Your Doctor, which talks about how many doctors administer vaccines to their patients because they are required to follow public health guidelines but privately do not use them with their own children.

4. I think it’s a disservice to the thinking public to talk about “vaccines” and not to discuss each vaccine individually. Again, perhaps PBS was dumbing things down for a mainstream audience. But you have to look at each vaccine on a vaccine by vaccine basis. If I decide not to vaccinate against tetanus, there is no way that I am putting any other child at risk by my decision. Tetanus is a bacterial infection found in the soil and contracted by doing things like stepping on a dirty needle. My child cannot give your child tetanus.

5. I wish the point that if vaccines really work, parents who do not vaccinate are not putting vaccinated children at risk was made a little more clearly. I’ll say it again for clarity’s sake: If vaccines work as well as public health officials claim they do, unvaccinated people do not ever put vaccinated people at risk for anything. Period. But vaccines do not always work. Some vaccines, like the one for pertussis, have more than a 20 percent failure rate.

6. No scientific studies have been conducted with a statistically significant group of completely unvaccinated children. That means that all the studies that have been cited as “proving” or “disproving” the autism connection (or any other vaccine issue) are inherently flawed. You need a control group. That’s Biology 101.

7. Paul Offit calls people interested in investigating the damage done by vaccines “pseudo scientists” because they keep looking for other aspects of the vaccines that may be causing autism. When you try a hypothesis and it fails, you try another hypothesis. That’s not pseudo-science. That’s the scientific method. Again, I wish PBS had interviewed a conventionally educated doctor or other health care practitioner to provide a counterpoint to Offit.

8. The producers chuckled when I made this point on camera (and did not use this footage) but I do believe that we all need to act for the greater good. More children die in traffic and car-related accidents than anything else in America. Our family has one (compact) car for six people and we drive it as rarely as we can. If Americans really care about keeping each other’s children safe, we would all dust off our bicycles, scooters, skateboards, and walking shoes. If we want to stop endangering children we need to get out of our cars.

I’ve heard back from several friends, including Peggy O’Mara, that the episode was more fair than almost any other mainstream coverage of the vaccine debate. This is a difficult and controversial topic fueled by enormous financial and political interests on the side of the vaccine manufacturers and the medical establishment. Though I’m sorry it wasn’t less biased, I guess PBS did the best it could. And, as an LA Times writer pointed out, the pro-vaccine side probably feels that too much coverage was given to the vaccine hesitant folks.

I’m already getting hate mail.

This email message (from someone who choses to loathe me anonymously) was titled: “You’re living proof…”

that brains are not a requirement to get a Phd in English Lit. I live in Ashland and I must say I was embarrassed for my community when I saw you make an ass of yourself on the Frontline special. I was also embarrassed to learn that almost 30% of the stupid hippie population of Ashland aren’t getting their children vaccinated for MMR and other childhood diseases. Please keep your kids away from mine.

“If you’re going to take a stand on controversial topics, people are going to hate you,” my husband says. “You should know that by now.”

By the time I bicycled home the baby had calmed down. A few minutes after Hannah left my son woke up and vomited all over the carpet in the hallway. I’m writing this in bed with the baby on one side snoring and her big brother on the other (and a bowl on the floor in case he gets sick again). This isn’t really a war. We are all parents. We all care deeply about keeping our children safe and healthy. Name calling and blaming each other are unproductive. Whichever side of the vaccine debate you come down on, we are actually all in this together.

You can access the full program on-line by clicking here.

Related post:
The Right to Refuse

If you watched PBS tonight, what did you think of the show? Which side are you on in the vaccine debate? Why do you choose to vaccinate your children? Why do you choose not to? What do you think we can do to help the two armies in the vaccine “war” stop fighting and find common ground?

Tags: , , , , , , , ,

[ 63 comments ]

PBS Frontline Episode About Vaccines Airs Tuesday, April 27th

April 26th, 2010

Picture 5Tomorrow (since I’m writing this at 9:30 p.m. after having spent all day on airplanes returning from New York City where I was at the American Society of Journalists and Authors meeting) the PBS show “Frontline” will air a full-hour investigative piece on the vaccine debate.

A producer and a cameraman came to Ashland when Leone was just a few weeks old and spent hours interviewing me, following us around town, and taking B-roll of the kids.

The press release makes me a little nervous.

They’ve decided to call the show “The Vaccine War” and I wonder if–as a parent who choses to selectively vaccinate my children–I will be portrayed in the episode as selfish, thoughtless, and unconcerned about the greater good.

You can watch the trailer here.

We don’t have a television at our house. I planned to watch it with some friends. But I had forgotten that James will be out of town and I haven’t arranged for a babysitter. Oy.

Will you be tuning into PBS? “The Vaccine Wars” airs tomorrow night at 9 p.m. ET and then will be available for viewing on the internet.

Related posts
PBS Frontline to Tackle Vaccine Debate
Monkey Study Shows Danger of Hep B Vaccine
Why You Should Question Vaccines for Your Children

Tags: , , , , , , , , , ,

[ 22 comments ]

PBS Frontline to Tackle the Question of Vaccines

February 1st, 2010

I don’t usually wear make-up.

If you don’t wear make-up you look washed out on TV.

Last weekend a PBS film crew was in town shooting footage for a Frontline documentary about the vaccine debate. They have been talking to people around the country on both sides of the issue, including Paul Offit, Jenny McCarthy, Bob Sears, Barbara Loe Fisher, J. B. Handley, and more.

They came to Ashland, Oregon because many parents here choose not to vaccinate at all, choose to selectively vaccinate, or choose to vaccinate fully but on a different schedule than the one recommended by the CDC.

At any given time in my house there’s a rambunctious 6-year-old pogo sticking in the living room, an 8-year-old reading on the couch, a 10-year-old practicing cartwheels, and a baby being a baby. So the producer, who wanted to interview me about our family’s decisions, suggested I come to their hotel room.

The first interview was Saturday morning. Since I don’t have make-up, our 17-year-old babysitter brought over her mom’s in the morning. Only she was late because the power blipped off in her house and the alarm didn’t go off and she overslept. Luckily I could blame the baby.

“You look horrible,” my 10-year-old said when I got back from being interviewed by PBS for three hours. “You look like you have bags under your eyes. Take that stuff off.”

“It’s awful,” her younger sister agreed.

Sunday afternoon Etani went to his friend Finn’s house. Baby Leone and I were to participate in a discussion about vaccines with Dr. Jim Shames, M.D., who is the Jackson County Health Officer. Finn’s mom put some eye shadow and mascara on me.

Then we walked in a rain storm with gusting winds. You can imagine how I looked by the time we arrived.

Monday they took B-roll of Hesperus doing gymnastics, Etani swimming at the Y, and me being spit-up on by Baby Leone. It was so hot in the swimming pool area that I felt like I was having early-onset menopause. No make-up Monday.

Tuesday before they left town they realized they needed more B-roll and stopped by to film the front of our house (think: uncut grass, untrimmed trees) and me in my office. I work at my computer sitting cross-legged on a couch. I was wearing a skirt, which kept riding up. “Uh, that’s NOT going to work,” the producer said. No make-up Tuesday.

The filmmakers shoot dozens of hours of footage and then spend 13 weeks editing it down to one hour. The film airs in April. We won’t find out until then if my made-up face makes the cut.

PBS producer Kate McMahon reviews her notes before the interview

PBS producer Kate McMahon reviews her notes before the interview


Camera man Mark Rublee sets up the microphone before the cameras start rolling

Camera man Mark Rublee sets up the microphone before the cameras start rolling

Tags: , , , , , , , , , ,

[ 19 comments ]






     DISCUSSIONS              JOIN NOW or SIGN IN
How to Deal with a Completely Toxic Person? posted by bubbledumpster, Sun, 25 Sep 2011 23:44:20 +0000
TOXIC Family... let's have it. posted by Imakcerka, Sat, 24 Sep 2011 12:55:34 +0000
my parents are coming to visit posted by Linda on the move, Wed, 21 Sep 2011 19:33:00 +0000
In a world of endless choices....how do you choose?? posted by youngspiritmom, Wed, 21 Sep 2011 07:36:13 +0000

Bottom Box