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Jennifer Margulis

Mothering Outside the Lines

One of America’s Top Pediatricians Leaves Pediatrics

February 24th, 2011

Maggie Kozel with her husband and two daughters. A top pediatrician, she decided to leave the profession. Her new book explains why.

Maggie Kozel with her husband and two daughters. A top pediatrician, she decided to leave the profession. Her new book explains why.

“You have to read this book,” my friend Rebecca urged, handing me back an advanced review copy I had loaned her. “Everyone needs to read this book. We need to get this book in front of every member of Congress. This is exactly what happened to me. This is why I left medicine.”

Even though I’m an avid reader, I have stacks and stacks of unread review copies, sent to me by authors or by their nice PR folks. It was one of these books, Maggie Kozel’s The Color of Atmosphere: One Doctor’s Journey In and Out of Medicine that I loaned to Rebecca. After her wholehearted endorsement, I put Kozel’s book on the top of the stack. I read it in two days.

Maggie Kozel with a patient when she was a Navy doctor

Maggie Kozel with a patient when she was a Navy doctor

In the book, Kozel describes growing up one of four children of often sloppy drunk and shouting parents. She escapes the depressed town of Point Lookout, New York to become a pediatrician. She meets her husband, Randy, in medical school (there’s nothing like dissecting a cadaver to spark a romance). Randy chooses a career as a neurologist. Eager to travel and see the world, they both find work at the US Navy Hospital in Yokosuka, Japan.

During her medical training, Kozel is at first resistant to becoming a pediatrician. “…[T]he last think I wanted to do was spend my time locked in mortal combat with screaming kids, digging wax out of their ears while their deranged parents hovered over me, wringing their hands,” she writes. “I had hated pediatrics in medical school.”

But become a pediatrician she does, learning how to intubate a premature baby and distinguish between a life-threatening childhood illness and a simple viral infection. Providing medical care to active duty military personnel and their families, Kozel and her colleagues “saw illnesses we never saw back in the States–typhoid fever, malaria, tuberculosis and many more … There were expert subspecialists a phone call and twelve time zones away, but we were the front line, doing what we were trained to do, and being a doctor was wonderful.”

After working for the Navy for ten years, Kozel, her husband and their two small daughters head back to America. They end up in Rhode Island, where she joins a pediatric practice. Used to the government’s single-payer health system, Kozel has to adjust to the system in the States. It’s demoralizing: Because pediatricians have to bill insurance companies in order to get paid, Kozel details how much of her practice’s decisions on treatment have more to do with how to make sure they will get paid than with what’s in the best interests of the patients. She finds herself working exhausting hours, rushing patients through appointments as fast as she can, and being pressured by parents to prescribe unnecessary medications.

So when a job opportunity at her daughter’s school opens up, Kozel acts precipitously and does the unthinkable: she quits her job as a doctor and becomes instead a high school science teacher.

Maggie Kozel in her new job: teaching chemistry to high school students

Maggie Kozel in her new job: teaching chemistry to high school students

She’s energetic and funny and the gum-chewing ponytail-wearing 14- and 15-year-olds love her. She works regular hours, is no longer exhausted, and does not have to decide her curriculum based on what the medical insurance companies will reimburse her for.

Color of AtmosphereThe Color of Atmosphere tells a gripping story. It’s an important book. It shows, firsthand, what’s wrong with our healthcare system. Kozel has been called a “traitor” by her colleagues on doctors-only Internet sites. I’m not surprised she’s struck a chord. Though so many doctors in America feel demoralized and burnt out, and though most feel that they are no longer delivering an adequate standard of care, it’s totally taboo, and a betrayal of the profession, to admit as much in public.

I applaud Kozel’s courage in writing such an honest book. I hope you’ll read it. And send a copy to Congress.

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[ 11 comments ]

Struggling with Fertility, a Couple Aborts Healthy Twin Boys Because They Want a Girl

January 14th, 2011

Maybe you’ve already read this disturbing article on Time.com about a presumably infertile Australian couple that announced this week that they have aborted healthy twin boys because they want to have a girl?

The unnamed couple already has three healthy boys.

They’ve been doing IVF treatments.

They had a baby daughter who died soon after birth.

Though we don’t know much about them, we know part of their story because they’re bringing their case to an Australian court. Sex selection is illegal in Australia but the couple is petitioning to try again.

If the Australians say no, they plan to come to America where, apparently, it’s okay to abort healthy fetuses in search of designer children.

According to Bonnie Rochman, who wrote the Time.com article:

“Since 2008, Victoria’s Assisted Reproductive Treatment Act has prohibited sex selection except in cases where it would allow parents to avoid transmitting a genetic disease. It’s legal — though still controversial in many circles — in the U.S., where pre-implantation genetic diagnosis (PIGD) is used to separate XX from XY chromosomes for reasons of ‘family balancing.’”

If my mother-in-law had been pro-choice my husband would have been an abortion. She got pregnant when she was just 17 and had James when she was 18. We refused genetic testing with every pregnancy because I knew I couldn’t abort a fetus that my husband and I conceived in love. I’m not explaining this well. I’m pro-choice. I believe a woman has the right to choose whether to continue or terminate a pregnancy. I believe it’s better to abort than to bring an unwanted child into the world who won’t be well taken care of.

When I was in my early twenties in a long distance unhappy relationship I found out I was pregnant. I agonized over what to do. I was so ashamed. Suddenly there were babies everywhere and happy moms pushing strollers. I locked myself in my room for two days and couldn’t stop crying for weeks. Ultimately I chose to have an abortion. I’m not proud that I did that. If you write me hateful angry comments at the end of this post, I will not delete them. Instead, I’ll agree with everything awful you think about me for having made that mistake. Every year for years afterwards on a Friday in October I would get profoundly depressed. I still think about the life that could have been but wasn’t, and I still wonder, all these years later, if I made a mistake.

When my friend’s daughter got pregnant by mistake, the family came together to help her. Her daughter’s twenty-two and has a two-year-old. I’m not trying to romanticize their situation: it isn’t easy. But that little girl adds so much joy and light to the world. My friend gets to enjoy a grandchild while she’s still young and energetic. And the whole family has come together because of the birth of that baby.

When another friend told me in a cavalier voice that she got pregnant by mistake and didn’t want another child (she and her husband, who are quite well off, already had four) so she had an abortion, I felt my face go numb.

Then there’s the friend who gave a child up for adoption when she was 18. Later she aborted an unwanted pregnancy (due to a birth control failure). Today she feels worse about the abortion than she does about the adoption.

I’ve come to hope that abortion will only be used in the most extreme circumstances.

Whatever the reason for having one, I don’t think abortion is ever a good choice.

“This is so unhealthy and so very sad,” Tertia Albertyn who blogs at So Close and who underwent nine rounds of IVF before giving birth to healthy twins, wrote to me when I asked her what she thought of this situation. “Sad for those parents who are obviously not handling their grief very well at all. Sad for the sons who might feel they are not enough. Sad for the daughter who died. Sad for the future daughter who carries enormous weight of expectation. And sad for us IVF’ers who get associated with stuff like this.”

After her own struggle with fertility, Albertyn went on to start an egg donor and surrogacy program in South Africa. She, too, has suffered and grieved the loss of a child, as she details in her book about her journey to fertility.

“I dont think aborting a fetus is ever a ‘good’ idea,” Albertyn wrote. “Perhaps, under some circumstances it is necessary. However, I do believe there are bad reasons for aborting a fetus and the baby being the ‘wrong’ gender is a very, very bad idea. If what it is euphemistically called ‘family balancing’ is required (where you have three girls and you desperately want a son), there are ways to ensure that only the required sex embryos are transferred to the womb. This is known as PGD. You do this prior to implantation, not after.”

But Patricia Mendell, Co-Chair of the Board of The American Fertility Association and a licensed therapist specializing in infertility in New York City, says if you are pro-choice it’s unfair to judge a couple that decides to abort for any reason. “I deal with pregnancy loss all the time and it is devastating,” Mendell told me during a phone interview. “If you’re pro-choice, the question becomes what makes one decision okay but another not okay?”

Mendell believes couples undergoing fertility treatments should get a lot of counseling and talk through all of the possible outcomes before they begin. “The problem a lot of times, besides the financial cost of all of this, is there are a lot of different and difficult choices,” Mendell said. “There’s no one right choice. That’s what’s really really hard for people.”

Readers, what do you think? Was this couple justified in aborting healthy twin boys in their quest for a girl? Should they continue doing fertility treatments instead of adopting a daughter? If you are pro-choice, do you believe abortion is always justified? Can you be pro-choice and anti-abortion at the same time?

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[ 27 comments ]

The Epidemic of Unnecessary C-Sections

December 22nd, 2010

In my last post here at Mothering Outside the Lines I wrote about an amazing mom who decided to have a home birth to avoid a fourth C-section.

I emailed Aneka’s story to my friend Denise who still has angry, unresolved feelings about a second C-section. Denise was fully dilated and pushing when the doctor told her there was “no way” the baby would be able to slip under her pubic bone.

Any birthing woman is incredibly vulnerable. Her senses are heightened. She looks to those around her for support and love and encouragement.

What if that doctor had told Denise she was doing a good job? What if that doctor had offered her something to eat or suggested she sleep between contractions? (In her book, Ina May Gaskin’s Guide to Childbirth, Gaskin observes that women sometimes need to rest, even sleep, after transition to renew their energy to push the baby out. She also notes that food eaten at the right moment during labor can be the fuel a woman needs to rally.) What if that doctor suggested laboring on all fours? What if that doctor had just said and done nothing but stayed with Denise in an attitude of encouragement?

When your body’s working as hard as it knows how to birth a baby it can be devastating if a doctor or a nurse or a midwife tells you you aren’t doing a good enough job. Or even suggests as much with an impatient or unkind attitude.

When I was more than 15 hours into labor with my first child I was only at four centimeters dilated. Instead of encouraging me the doctor on call–the only man in the practice and the only doctor I had never met previously–told me I was being selfish and making my family suffer unnecessarily (my mom and my husband were there) and that I should think of other people and get an epideral and pitocin.

For Denise just trying for a VBAC had already been a fight. But how could that doctor have known that Denise’s baby couldn’t be born vaginally? Was the doctor subconsciously (or consciously) punishing her for having the hubris to try to do it her way? Or was the doctor just impatient for the baby to be born?

We have a C-section rate in this country that is so high that Amnesty International has issued a call to President Obama to address what they call the systemic failures in the maternal health care system in America.

Augustine Colebrook, a midwife and mother of three who has just founded a birthing center in Medford, Oregon, recently taught a childbirth class for six couples.

Three couples were planning home births.

Three were planning hospital births.

The three moms who chose to birth at home had healthy babies and no complications.

The three who chose to birth in the hospital? They all ended up having C-sections.

As Tiffany, a labor and delivery nurse, pointed out in a comment on my last post, Cesarean birth can be a life-saving intervention. It is a wonderful operation, a medical miracle that can save the life of an infant and a mom when used in a real emergency.

An impatient doctor is not an emergency.

A hospital that profits from billable hours for the operating room is not an emergency.

A previous C-section is not an emergency.

A breech baby is not an emergency. (Babies turn during labor. Vaginal breech birth done correctly, which usually means with as little intervention as possible, has been shown to be safer than major abdominal surgery for most women.)

Twins are not an emergency.

Most people don’t realize that the skyrocketing C-section rate in America has devastating ramifications.

The United States lags behind 40 countries in maternal death rates.

It’s safer to have a baby in Bosnia and Herzegovina, a country recovering from civil war, than it is to have a baby in America.

Katelyn couldn’t lift her baby for weeks after having an unplanned C-section. Her son was born 11 years ago. The operation gave her terrible gastrointestinal problems that continue to this day.

Nora’s scheduled C-section ended in weeks of anxiety. One of her baby’s lungs collapsed and he had to be helicoptered to a hospital with a NICU. “I think the doctors got the dates wrong,” she mused afterwards. A doctor herself, she hadn’t realized that the risk of not letting her body go into spontaneous labor includes premature birth.

This major abdominal surgery has many other risks: hemorrhage, infection, organ damage, scar tissue adhesions (including placental accreta, placenta increta, and placenta percreta), delayed interaction between the baby and the mom which can lead to bonding problems and breastfeeding difficulties, a longer and more painful recovery time, post surgery stress disorders, higher chance of rehospitalization, higher chance of complications in subsequent pregnancies, higher risk of respiratory problems for your baby, and more.

Let’s follow Aneka’s lead and stop the C-section epidemic in America. Isn’t it time for American women to be empowered to give birth on their own terms without unnecessary, even life-threatening, intervention?

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[ 17 comments ]

A Mom Says “No Way” to C-Section Number Four

December 20th, 2010

The safest way for a baby to be born is vaginally but the C-section rate in this country is skyrocketing. American women are starting to protest. If doctors don't let them do VBACs in the hospital, they're choosing to have their babies at home instead.

The safest way for a baby to be born is vaginally but the C-section rate in this country is skyrocketing. American women are starting to protest. If doctors don't let them do VBACs in the hospital, they're choosing to have their babies at home instead.

Last week we were talking about nursing past three and I’ve been reading through all of the comments now that Baby Leone and I are back from a hectic week in Boston. Thank you to those who weighed in on extended nursing. I’ve been fascinated to read the discussion that series started and I’m inspired by the stories everyone shared.

On the subject of inspirational stories, maybe you’ve already heard this amazing CNN story of a mom of four who didn’t show up for a scheduled C-section.

The doctors told Aneka that since she had three previous C-sections she would have to have a fourth.

When she informed the doctor she wasn’t coming in, the doctor told her she could die and her baby could die. Then the doctor hung up the phone.

Ten years ago a doctor cut into her belly because her labor wasn’t progressing fast enough.

Fast enough according to whom?

“Failure to progress” is a common reason for C-sections.

“Failure to progress” is a meaningless combination of three words that seldom makes sense in the context of human beings giving birth.

Birth is not a linear process.

Birth is not a fast process.

Often a labor slows down or even stops in the hospital because of doctor or nurse intervention.

That’s what happened during my first birth.

When we went to the hospital after my water broke the doctor on call ordered a speculum exam over the phone to confirm that my water was broken. When we refused (a simple litmus test would have sufficed), the doctor told me that I could have a ruptured bladder and that my baby would die if I did not follow her orders.

I had been contracting regularly.

After the doctor and my usually mildly mannered husband got into a screaming match on the phone, my contractions stopped altogether.

This is a body’s very smart survival mechanism.

When a laboring animal in nature feels threatened, the birth process often slows down or stops until the threat has passed.

How would a birthing bear respond if someone stuck their fingers up her yoni? (Doctors and nurses routinely “check” laboring women by putting their hands up the vagina. I don’t know about you but I find it rather inhibiting when someone I’m not married to tries to put his hands up my vagina.)

How would a through-hiker on the Appalachian Trail make it past the first three miles with nothing to eat? (In most hospitals laboring women are denied food in case they need surgery later.)

I have a friend who was in labor for forty hours. She had an unassisted home birth. If she had been in the hospital, she would have been cut open. If she had had a midwife attending her, she may have ended up in the hospital. She gave birth to a healthy 10 pound 12 ounce baby boy without any interference or problems at all.

I know of another woman who was in labor for four days. Her husband told me he was glad they were delivering at home so no one rushed them.

Labor takes a long time.

It can take such a long time I’m going to write that sentence again.

Labor takes a long time.

But hospital doctors are often in a hurry. They don’t want to sit on their hands and wait for a woman’s body to open up in the time she and her baby need.

Doctors are not trained to sit on their hands and wait.

Doctors didn’t go to medical school to sit on their hands and wait.

Doctors didn’t incur all that debt to sit on their hands and wait.

Doctors aren’t making $250,000/year to sit on their hands and wait.

Doctors are trained to intervene.

As more hospitals refuse to let women have VBACs (Vaginal Birth After Cesarean), more women who want vaginal births are choosing to have their babies at home with midwives.

That’s what Aneka did.

On December 5, after twenty hours of labor, she pushed out a perfect 9 pound 6 ounce baby boy.

Welcome to the world Baby Annan Ni’em!

Do you think Aneka is a hero who defied the medical establishment and gave birth her own way or an irresponsible risk-taker who put herself and her baby in danger by giving birth on at home?

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[ 22 comments ]

Stupid Advice Your Doctor Gave You … and what you learned from it

December 1st, 2010

Photo by Jennifer Margulis

Photo by Jennifer Margulis

“When my baby turned one, my doctor told me to feed her ice cream every night, because she was measuring small for her age. It was my first child and I didn’t know better. No wonder she doesn’t like carrots. I was just clueless. Clueless. Thankfully when #2 and #3 came along I chose to listen to my doctors more selectively.” —K., mother of three in Solon, Ohio.

“An hour after our first baby was born the nurse tried to give her a Hepatitis B vaccine. I didn’t understand why we would vaccinate for a sexually transmitted disease when my husband and I both tested negative. I told the nurse we needed time to learn about it. Once home we started frantically researching, calling every doctor and nurse we knew, asking our parent friends for their advice. I also called the CDC but they never called me back. Two weeks later a doctor told me the vaccine had been withdrawn for newborns and was actually counterindicated, because it contained thimerosal, a preservative made from mercury and a known neurotoxin. I learned I needed to educate myself about the recommendations for childhood vaccinations and not blindly follow the doctor’s advice.” —J., mother of four in Ashland, Oregon (that would be yours truly but I’m writing it this way to be true to the form of this post.)

“During my first pregnancy I had sudden massive bleeding at 33 weeks. I was traveling to my parents’ home and far from my midwives, so I had to go to the hospital in my hometown, which was quite small. Fortunately the baby was doing fine, so they kept me on bedrest, but when I continued to have sporadic and significant bleeding episodes over the next day or so they said they would have to take the baby out right away the next time I had a bleed, despite the considerable risks of prematurity. We switched doctors and hospitals two more times before we found a doctor who believed in waiting and watching without intervening. The bleeding stopped and I was able to return to our home, where our son was born at full term in our birth center in Cambridge. I learned to always get a second, third, or even fourth opinion when possible (even by phone: we were in touch with our Bradley instructor and our midwives back home). It was pretty interesting to see how differently so many different medical caregivers approached this sort of emergency. I also learned to find support and information wherever you are. My husband and I found a doula and other alternative-birth support quickly which also helped us to find the right medical practice for our situation.” —C., mother of four in Cambridge, Massachusetts.

“I thought my PCP had written me a year’s worth of birth control at my last pap smear but instead I found out on a Friday she’d only written me a prescription for two months and I was about to run out. The pharmacy wouldn’t give me more without a prescription and my doctor didn’t return their calls that Friday, so I had to page the emergency doctor over the weekend and have them call it in. I know emergency docs aren’t there to dispense birth control (as the dispatcher insisted and I kept insisting she put me through), but if my doctor had written a full year’s prescription, I wouldn’t have been in that situation to begin with!

The same doctor told me I didn’t have a yeast infection even though I was displaying all the symptoms. I’d gone in for a pap smear and the letter from the lab said everything was hunky dory. Then I go see a gynecologist a month later because I’m still in pain and she nonchalantly informs me that my test results DID show a yeast infection but whomever processed my test results missed it because they didn’t scroll all the way to the bottom. Although I generally like and trust doctors, these two experiences have made me feel like they’re sometimes too busy to be thorough and that I need to be better about checking everything myself.” —S., Boston, Massachusetts.

“I went into the ER for a kidney stone once and woke up in the cardiac ward because they gave me so many medications that my heart rate went through the roof. They lost the kidney stone and couldn’t test it for its chemical makeup. I learned to keep my wits about me at all times when dealing with the medical industry, have someone in the hospital with you (at all times, if possible) who feels comfortable advocating for you and respects your wishes.” —S., Oakland, California.

“When I was pregnant, the doctor’s office gave me a set of lab reports to take to the hospital where I had to get a Rhogam injection. I sat in the waiting room and there was one result that was listed as abnormal. I didn’t have time to process it because I was called back and handed over the report. I asked my doctor about it later and she said she saw nothing abnormal, but I know I saw something. I had nothing to refer to, though, to specifically ask about or research (fortunately the pregnancy turned out just fine). It bothered me not to be able to look at and think about my own information about my body. My primary’s office will not copy me on lab reports and instead send me their own recap of them, which does not make me happy. In New York state patients are NOT entitled to access lab reports unless their doctors consent. How’s that for screwy? It’s my information and I pay for it, yet I am not allowed to access it. Now I make a habit to request copies of lab reports, because I want to have my own records (so I can research things, compare results over time, and bring them with me if I see new doctors).” —B., mother of two in Buffalo, New York.

“Every time I went to the doctor my blood pressure was high. He said it was due to ‘white coat hypertension,’ meaning it was because I was nervous at the visit. Then I started reading that white coat hypertension was not always limited to doctor visits—that many doctors mistakenly think it is, but the patient’s blood pressure is really high at other times, too. I asked him for a 24-hour monitor, which he agreed to. And the result was that I had pre-hypertension and was put on meds. My doctor did not say anything about how diet can influence high blood pressure. It wasn’t until I visited a health spa that offered a no-salt diet that I realized my high blood pressure was directly linked to my high salt intake. I ended up going off my meds and watching my salt intake really closely. I learned that most doctors don’t get any training in nutrition and I would have to learn about how a healthy diet could improve my blood pressure, and overall health, on my own.” —S., mother of two in Wilton, Connecticut.

“I went to my doctor complaining of exhaustion. I wanted a sleeping pill because I was having trouble getting my sleep routine fixed after being awake so often with the baby. She was now sleeping through the night, but I wasn’t. I kept waking every couple hours with a jolt. I’d also lost a bit of weight. Some of my hair had fallen out. But my main complaint was exhaustion. I had never been that tired in my life. I told him I was so tired that I didn’t even want to stand up, and that it had suddenly gotten worse in the past few days. I told him that my glands were very swollen and that they seemed to swell a lot.

The doctor didn’t examine me. He took my self diagnosis of a sleeping issue and then decided that I must also have a mood disorder. He said something about how there’s no test for serotonin and then instead of a sleeping pill, he prescribed something that is usually given to people with bipolar disorder. He told me that it would increase my appetite and make me pleasantly sleepy at night. I tried it for three days. It didn’t help me sleep. It didn’t give me energy. It made me extremely hungry—so hungry that I couldn’t get anything done because I couldn’t stop thinking about eating.

Then I got a fever and my throat started to hurt. I went back to the doctor. I had strep. I probably had strep before and he might have realized that had he examined me like a normal doctor and actually looked in my throat. I learned that if a doctor misdiagnoses you, it’s time to change doctors. I have a new doctor now and I love him.” —A., mother of one in Emmaus, Pennsylvania.

“July 4, 2005, I came down with flu symptoms. My energy was completely gone. Lyme Disease cannot be detected in blood for a month after a tick bite, but my general practitioner did blood tests anyway. He decided I didn’t have Lyme disease but there was something wrong with my liver. I begged for another blood test a month later. Sure enough, I did have Lyme. It felt like being run over by a train. I called a friend whose husband is a contagious diseases doctor. He recommended 6 to 8 weeks of Doxycycline, since there was a delay in diagnosis. My doctor only wanted to give me three, but I insisted. A month later I saw a Lyme specialist who pronounced me cured. My reaction? No way! My immune system was shot. I sought out a whole health doctor who prescribed the herb Cat’s Claw and explained we cannot know whether the Lyme may have become chronic. I have not had a relapse, so perhaps I’m one of the lucky ones. But how infuriating early on to have my GP misdiagnose. Lyme is almost an epidemic where I live! This experience taught me to follow my intuition, listen to my body, and seek out a doctor I can trust.” —A., mother of three in Wellfleet, Massachusetts.

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[ 14 comments ]

More on the Newborn who was Circumcised Against his Parents’ Will

November 22nd, 2010

There are over 5,659 comments on an article in today’s Huffington Post about San Francisco’s proposed ban on infant circumcision, which could appear on the ballot next November.

I recently spoke at length with Spencer Aronfeld, the Coral Gables-based Florida lawyer representing Vera Delgado to seek retribution from South Miami Hospital, owned by Baptist Health.

Three months ago, in August 2010, South Miami Hospital circumcised her infant son, Mario Viera, without parental consent.

No men in Delgado’s family are circumcised. Mario’s father isn’t circumcised. Delgado had no intention of circumcising their son.

But when she and her partner went home from the hospital to shower and change her clothes after eight days of being by their son’s side in the NICU (he was there for some complications suffered at birth), a doctor circumcised him while she was gone.

“In that window of an hour and a half they went into the NICU and performed a circumcision,” Aronfeld told me.

Now the hospital is trying to cover its tracks. According to Aronfeld, a note appeared in Delgado’s record that says the doctor had a lengthy conversation with the parents about circumcision, and they said yes.

But, Aronfeld says, the parents were not even in the hospital at the time that the hospital says the conversation between his client and the doctor occurred.

The hospital has been unable to produce a signed consent form.

“I allege it is a battery,” says Aronfeld, who has specialized in patients’ rights law for twenty years. “An unauthorized touching that causes harm, like if someone punches you in the face or stabs you with a knife.”

Aronfeld is Jewish. He chose to have his own son circumcised in a traditional Jewish ceremony called a “bris” or a “brit milah,” and he himself is in favor of circumcision for religious reasons.

He says the case is not so much about circumcision but about parental consent.

“Whether it is done routinely, it was not what this family wanted,” Aronfeld said. “It certainly seems that this is a stunning example of putting profits over safety.”

The Hospital Responds
The lawyer representing South Miami Hospital, Scott L. Mendlestein, did not return my phone calls.

However, South Miami Hospital’s Marketing and Public Relations Manager, Bethany Rundell, said the hospital issued a statement after they discovered their mistake.

The hospital’s official statement reads:
“The baby’s circumcision was an unfortunate mistake caused by a misread consent form. As soon as the error was discovered, the doctor and nurses let the family know what had occurred. We also immediately implemented new processes to ensure this mistake will not occur again. The procedure itself was performed following appropriate surgical guidelines and the baby didn’t have any complications. Nevertheless, we’re all deeply sorry that this happened.”

Rundell refused to answer any non-medical questions about the case, writing in an email: “I am not comfortable talking about the case that’s in litigation right now…”

The hospital’s Chief of Pediatrics and a neonatologist Jorge E. Perez, M.D. did answer some questions over email. He said the procedure takes about ten minutes and that babies recover from the wound in “a few days.”

Dr. Perez also cited seven reasons that circumcisions are routinely performed.

1) Ease of cleanliness and personal hygiene
2) Custom of approximately 80% of American males
3) Prevention of paraphimosis
4) Prevention of penile cancer
5) Questionable prevention of cervical cancer in females
6) Questionable prevention in the transmission of HIV
7) Prevention of need for later circumcision

According to Rundell, between May and August of this year, South Miami Hospital circumcised 22 percent of its total deliveries. It is a 467-bed hospital and approximately 4200 babies are born there each year. Rundell has gathered from anecdotal evidence that 50-60 percent of the boys born at the hospital are circumcised. This “is below the national average cited by the Centers for Disease Control and Prevention in 2007,” Rundell wrote in an email.

The hospital’s attempts to prevent Aronfeld and his client from speaking to the media have failed. On November 2 a judge denied issuing a gag order.

Mario’s Law
Aronfeld said demonstrations by anti-circumcision activists (known as “intactivists”) have been held outside the hospital, with dozens of protestors holding up signs.

Vera Delgado is helping to get support for a bill in the Florida legislature to create what intactivists are calling Mario’s Law [http://www.youtube.com/watch?v=p3YPUk_bY8A]. The bill would require a waiting period on circumcisions, similar to the period a customer has to wait to buy a firearm. This way new moms and dads, who may be recovering from the labor and delivering and adjusting to life with a newborn, will not feel pressured into making a medical decision before they are ready.

Do you think there should be a waiting period before babies are circumcised? Do you think San Francisco and other cities should ban circumcision outright? Did you choose to circumcise your own sons? Please share your thoughts in the comment section below.

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[ 58 comments ]

A Newborn in the Hospital Circumcised Without his Parents’ Consent

September 17th, 2010

After reading this article in the Miami Herald, “Accidental circumcision leads to lawsuit, protest,” I feel sick.

The article details how an 8-day-old baby, who was staying in the intensive care unit of South Miami Hospital, was circumcised without his parents’ consent.

They did not want him circumcised.

They did not sign a consent form.

No doctor or nurse asked the parents before doing the procedure.

How could this have happened?

It’s so disturbing and unbelievable that a doctor would cut off part of a tiny baby’s body without verifying that it should be done with the parents beforehand.

The little boy’s mom, Vera Delgado, is suing the hospital for personal injury and suing the doctor who performed the surgery for battery.

I think the Delgados deserve a tremendous amount of monetary compensation. But money won’t change the fact that Vera Delgado’s son has had his body violated and a part of his penis forcibly removed. I hope this case gets as much media coverage as possible.

It’s time for American hospitals to stop doing unnecessary interventions on newborn babies. We live in the 21st century. Let’s stop mutilating baby boys.

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[ 15 comments ]

The Thinking Parent’s Dilemma; or, Another Dentist Refuses to Treat my Children

July 30th, 2010

The 20-something dental hygienist, wearing dark purple scrubs, smiled at my children and me as she motioned for us to follow her to the examining room.

“Okay,” she chirped at my 10-year-old daughter, “Mom will wait outside while we take a quick picture of your teeth.”

I could feel my face stiffen.

“We aren’t going to do X-rays this time,” I said, keeping my voice as casual as possible. “I mentioned that we didn’t want X-rays when I called for an appointment, and I also wrote it in on the consent form.”

The young hygienist furrowed her brow. “Ah, okay,” she said, her eyes darting awkwardly away from my face. “Just wait in here while I, uh, go check on that.”

She came back a few minutes later.

“Dr. Y says that you have to have X-rays,” she said, still unable to look at my face. “She says she can’t treat your children without them.”

This was in May, 2010, just a few weeks after the President’s Cancer Report, “Reducing Environmental Cancer Risk: What We Can Do Now,” was released. On page 7 of the report, in large font, is a section entitled, “Children Are at Special Risk for Cancer Due to Environmental Contaminants and Should be Protected.”

That 240-page report states definitively that cancer among children (and adults) is on the rise in the United States. Out of 50 countries, the United States has the dubious distinction of rating #9 in the number of deaths from cancer. According to the American Cancer Society, an estimated 10,700 children ages 0 –14 will be diagnosed with cancer in 2010, a rise of more than 10 percent from just five years ago. While childhood cancer is considered “rare,” it is the second most common cause of death among children (after accidents). It is predicted that 1,340 American children this year will die from cancer.

The numbers sadly confirm the anecdotal evidence among our friends and family. As I’ve mentioned previously on this blog, our 14-year-old neighbor Michael is battling leukemia. My daughter’s friend Isaac’s older sister Whitney was 18 when she died of non-Hodgkin’s lymphoma after fighting it for four years, and more than twelve of our adult friends (including my 62-year-old father-in-law who has throat cancer, my 29-year-old friend Faigy who has five children and Stage IV melanoma, and my daughter’s first grade teacher who died at age 59 from breast cancer) have been afflicted by cancer.

The President’s Cancer Report is very clear that radiation (that is, exposure to X-rays) is a known carcinogen and that the more you are exposed to radiation the more likely you are to get cancer. We have all heard that X-rays are harmful. That’s why you and the hygienist leave the room when your child’s teeth are being X-rayed. That’s why your child wears a lead bib to protect the rest of her body from the harmful X-rays. But what I didn’t understand until I started learning more about it, and what most of us don’t think about, is that the harmful effects of X-rays are cumulative. That means that every time you get exposed to X-ray particles, even if the exposure itself is very small, you increase your risk (or your child’s risk) of getting cancer.

According to the report, “…[I]f patients were more aware of radiation exposure due to specific tests and the cancer risk that can accrue with cumulative medical radiation exposure, they might be more likely to raise this issue with their physicians” [my emphasis.] It seems like a simple thing to say, “No thank you. I don’t want my daughter’s teeth X-rayed this time,” but I was worried about bucking the system and a little unsure about how the dentist would react. That’s why I called the practice ahead of time and why I also put the request to not do the X-rays in writing. When Dr. Y came to talk to me about it, I explained that I was requesting we forego using X-rays as a diagnostic tool and only use them if she found something in my daughter’s mouth that was cause for concern.

If you’ve never questioned medical or dental authority before, the idea that the dentist dismissed my family from her practice might surprise you. But if you’ve been gently asking the doctors and dentists and other health care providers who care for your children to intervene as little as possible, chances are this story is maddeningly familiar to you. To Dr Y’s credit, she came to talk to me about her decision not to treat us. She argued, quite reasonably, that the miniscule risk of harm from the X-rays far outweighed the good they would do as a diagnostic tool in looking at my daughter’s mouth.

“They get more exposure to radiation by traveling on an airplane,” she said.

“I know!” I said, hoping to have found a way for us to agree. “I’m worried about that too. Since we travel by plane sometimes and since the effects are cumulative, I’d like to limit radiation exposure wherever I can.”

Dr. Y shook her head and sighed. Our conversation was going in circles. She insisted she did not feel she could provide us the high standard of care that she had been taught in her eight years of schooling without doing X-rays. I explained again that I wasn’t against doing X-rays per se but that I saw no reason to do them unless she saw something to suggest they might be necessary. I said I would of course agree to X-rays if anything in my daughter’s mouth gave her cause for concern.

I also asked her if she read the President’s Cancer Report.

She had not.

“If I’m your dentist, I’m responsible for your daughter’s teeth and I cannot effectively evaluate them without X-rays,” Dr. Y said.

“But as my daughter’s mother, I’m responsible for her health from now until she’s 18 years old and beyond. If she gets cancer at 14 and I come back to you and say, ‘I think the X-rays were one reason why she has cancer now,’ you’ll laugh me out of your office.”

This is the thinking parent’s dilemma. As parents, we are responsible for every aspect of our child’s health, not just today, but for the rest of our child’s life (or at least until they turn 18). While any given health care practitioner has our baby or child’s best interests in mind as it relates to his or her area of expertise, that health care provider is only responsible for a very small part of our child’s heath.

Dr. Y very rightly cares about her patients’ teeth. That is her only concern.

But as my daughter’s mother, I care about her overall health—not just her teeth. Since she has mostly baby teeth anyway, I care much less about whether she might have a cavity than about how her cumulative exposure to radiation might harm her later in life.

This is the second time in three months that a dentist has refused to treat my children.

The first, which I wrote about in this post called “Difficulties at the Dentist,” was because we refused the fluoride treatments. While I appreciate the time Dr. Y spent talking to me about our difference of opinion (unlike Dr. A), I’m greatly saddened by the outcome. I still don’t understand how it is in any way beneficial to the health of a child’s teeth for a dentist to refuse to examine them because of a disagreement with a parent’s request to intervene only when necessary.

This story has a happy ending of sorts. A colleague of Dr. Y’s, who is a fantastic dentist with a great bedside manner and a hilarious sense of humor, overheard the conversation and took pity on us.

Though he thinks I am wrong about X-rays and fluoride, he agreed to put the children on his client list.

It’s official: we now have a family dentist.

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[ 58 comments ]

Doctors Doing Damage

July 6th, 2010

When my friend B. went to see a specialist last Thursday, she watched a representative from a drug company sail into the waiting room carrying six cups of coffee and a bag of pastries for the office. In the meantime she sat and waited. And waited. And waited. She had an 8:30 a.m. appointment but wasn’t seen until 9:15. “It’s just wrong,” she wrote in an email to some friends.

We haven’t been to the doctor in almost three years and I have been struggling with camp forms lately, wondering who to list as our primary care physician. Do we even have one? But I remember four years ago when I took one of the kids to the doctor and was told to take a seat.

After twenty minutes I asked if the doctor was running late.

The receptionist answered with a surprised smile, “Oh, no. He’s on time. Have a seat. We’ll call you.”

It took an hour and fifteen minutes to be seen.

In what other profession can a sales representative who flits in without an appointment be seen ahead of a paying customer? In what other profession could you stay in business and constantly be so late?

If you show up an hour and fifteen minutes after class starts … you miss the class.

If you’re a pilot and you come an hour and fifteen minutes late for a flight … you get fired.

We weren’t even given an apology, or an acknowledgement that we’d been waiting for so long.

Not only were these doctors running inexcusably behind schedule, they seemed to feel no accountability for their actions.

But there are much bigger problems in today’s medical system than just an astonishing lack of punctuality.

Instead of treating us like active participants in keeping up the health of our bodies and our children’s bodies, doctors often act like we’re obtuse.

This power dynamic usually starts from the first interaction. A doctor introduces himself by his last name and title, expecting to be called Dr. X, but inevitably calls you by your first name (or just “Mom” if you’re in the hospital having a baby, which is even more insulting), establishing that he is (presumably) more educated, more knowledgeable, and more worthy of respect than you are.

He acts hurried in your presence (he is, of course, because he’s running an hour and fifteen minutes behind schedule) and treats your questions like petty annoyances.

Even when you have a good, genuine, equal relationship with your health care provider, your relationship can change in a shorter time than it takes to snap your fingers if you refuse a recommendation.

Pregnant with my first child, I declined a pregnancy-induced diabetes test. I was aversely affected by sugar and I knew the test would make me sick for the rest of the day, if not the week.

Since I couldn’t eat sugar, I was on an ultra healthy no-sugar diet. A typical dinner was raw broccoli, green beans, a glass of milk, and a half a cup of plain yogurt. I wasn’t eating that way to be virtuous. Small quantities of healthy high protein food and vegetables alleviated the overwhelming nausea I had. I exercised every day and lost weight in the first trimester.

So when a hospital nurse midwife ordered this routine test, I asked for more information. She got annoyed. I explained that I was severely affected by sugar and was eating none, and barely any fruit (except pineapple, which I sometimes craved). She told me the cure for pregnancy-induced diabetes was to go on a low-sugar diet, the diet I was already on.

“You’re going to buy yourself a C-section,” the nurse midwife said angrily, scaring me with a detailed list of the myriad problems that would result because of my refusal. My baby would be enormous and possibly malformed. I could die in labor. Because I refused a simple glucose test? It seems silly now but I left her office, sat in the car in the parking lot, and sobbed.

Eight months later the doctor (I switched practices) ordered an emergency sonogram. “For inter-uterine growth retardation,” she said offhandedly. “You’re measuring too small.”

After six and a half months of nausea, I felt so good I had started biking long distances every day, fast.

“Could I be measuring small because I’ve been exercising?” I suggested.

“Not a chance,” she said, hurrying away to “help” another patient.

We all have the same goal: good health. It’s time for doctors to slow down, talk reasonably instead of using scare tactics, and not be so hurried and so prejudiced by their own preconceptions that they do not listen. It’s time for them to put the needs of the patients first and the needs of the drug companies last.

It’s also time for people seeking medical attention to insist on being treated respectfully and not assume that the doctors know what’s right for them.

Those providers have forgotten me—not one could remember my name. But their words, their insensitivity, their hurriedness, and their arrogance have had a lasting effect.

A version of this post first appeared in a print issue of the Ashland Daily Tidings.

Do you spend a lot of time at the doctor’s office? Are you happy with the way you and your children are being treated by your health care provider or do you feel your doctors are doing you a disservice?

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[ 22 comments ]

Do You (or Does Your Husband/Father/Son) Feel Bad About Being Circumcised?

July 1st, 2010

Since penis is not a word you’ve read on this blog before and since I’ve deleted the 15 other incarnations of this sentence and I’ve been staring at this white screen wondering how to approach this topic, let’s just put the word penis down a few times to get used to seeing it here:

Penis penis penis.

Today, my friends (Dad, stop reading this), we’re going to talk about penises.

Although in England fewer than five percent of men are circumcised, about 79 percent of American men get a totally functional and important part of their anatomy cut off within a few hours or days of being born.

That means the vast majority of American men no longer have intact penises. My husband is circumcised. My brothers are circumcised. My dad is circumcised. And some, not all, of my male relatives are circumcised.

If you’re male and American and reading this, chances are you’re circumcised.

The removal of the male foreskin, aka circumcision, is a painful and invasive procedure.

Since the foreskin is attached to the head of the penis (also called the glans), like a fingernail is attached to the nail bed, in order to remove it it has to be forcibly pried away.

Imagine someone separating a newborn’s nail from the nail bed by inserting a blunt metal object between the two and you get the idea.

For the week or so that the cut is healing, a baby is peeing and defecating on a raw, open wound.

Even with anesthesia, the procedure can cause terrible pain. If you don’t believe me, you can watch one for yourself on the Internet.

It’s a hard subject to talk about, especially if you’re circumcised or if you decided to have your baby circumcised. As Georganne Chapin, the head of Intact America (an organization that opposed circumcision), said to me when I interviewed her on the phone several months ago:

“This is such a deep topic and deeply felt subject for people. Men who are circumcised, women who have allowed their babies to be circumcised. It’s not a hypothetical conversation for most people. When you talk to people who haven’t really thought about it, you see their eyes darting all over the place, looking for safety … It’s just not a neutral conversation that you have with people. How can you have those conversations without pissing people off? Without bursting into tears yourself?”

The first time I questioned circumcision was when I was in my twenties and an Irish boyfriend asked me if I planned to circumcise my sons.

“That would be the dad’s choice,” I said. “I haven’t really thought about it.”

“I want you to think about it,” Martin insisted. “It’s barbaric. You can’t do that to a baby.”

“But,” I began. “I’m Jewish. All Jewish men are circumcised.”

Martin sent me a package of information about circumcision, including testimonies from men who felt they had been violated as children and men who tried to get foreskin transplants. Though most men choose NOT to think about how they have been mutilated as children, when men DO think about it, they start to get mad.

The more James learned about circumcision, the angrier he got. James’s family is from Italy and Ireland. There was no cultural reason he should have been circumcised.

“I just wish my parents had given me the choice,” he said sadly one day, after reading this incredible article, “The Case Against Circumcision,” by Paul M. Fleiss, M.D., about why circumcision is medically unnecessary and ethically unfair.

I’m not going to mention how men who are intact create natural lubricant that makes sex more pleasurable and more comfortable, or how botched circumcisions can lead to forced sex change operations. I’m not even going to cite the new study that shows that 117 boys die a year from circumcision. And I’m not going to tell you that hospitals not only make money off the procedure but even sell human foreskins to companies that make artificial skin and high-end beauty products. I’m not going to enter the debate about whether circumcision is helpful in preventing AIDS or in avoiding UTI’s.

I’m just going to say this: Let’s let American men choose whether or not to be circumcised. Men can decide when they are old enough to be sexually active. The covenant with God (the Jewish justification) can wait until a boy is old enough to decide if that’s a covenant he needs to make.

Unless there’s an urgent medical reason, we have to stop hurting America’s baby boys.

Against circumcision? You can send a message to the American Academy of Pediatrics Task Force on Circumcision not to recommend routine male circumcision.

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[ 21 comments ]






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Want to Change My Life...And Break out of the SAHM Role---Re-Posted posted by allthesekids, Thu, 08 Dec 2011 14:36:13 +0000
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need to know im not the only one :-( posted by totallyhadenuff, Thu, 24 Nov 2011 08:05:23 +0000

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